Prostate Cancer Survey
A recent prostate survey of more that 1400 prostate cancer survivors and partners showed that only 41 percent of men with prostate cancer were referred to an oncologist at some point during their prostate cancer journey.
The survey, released by ZERO – The End of Prostate Cancer, is the organization’s first patient education survey, with the goal of better understanding the experiences of those affected by prostate cancer and learning about their educational needs.
ZERO’s survey also showed that men need and want to be more informed about prostate cancer.
54 percent of men made treatment decisions to avoid certain side effects. Approaching a prostate cancer diagnosis with a multidisciplinary medical team allows for men and families to consider all treatment options and make the most informed decision.
The survey also examined collective needs at the time of diagnosis, including information on prostate cancer, treatment options, side effects, and resources for emotional support. Later in the prostate cancer journey, patients and caregivers were looking for information on survivorship, clinical trials, other treatment options, and how to engage with the prostate cancer community.
Online, printed materials, videos, blogs, and webinars were identified as the best outlets for prostate cancer patients to receive information. ZERO was identified as a preferred source for prostate cancer information.
The survey was conducted from November 20, 2013 through January 21, 2014 and was open to the public. Respondents were recruited using personal outreach to ZERO’s constituents, our social media networks and partner organizations. The survey findings are descriptive, and will be used to enhance ZERO’s educational materials and programs and to guide development of new materials.
The full survey report is available here, along with ZERO’s Top 10 Tips for talking to your father or son about prostate cancer:
About ZERO — The End of Prostate Cancer
ZERO – The End of Prostate Cancer is a national nonprofit organization with the mission to end prostate cancer. As a leader in the fight against prostate cancer, ZERO advances research, encourages action, and provides education and support to men and their families. ZERO’s premier programs include the ZERO Prostate Cancer Challenge, the largest men’s health event series in America. ZERO is a 501c3 charity, a Better Business Bureau member and 98 cents of every dollar donated goes to research and programs.